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PFFD (Proximal Femoral Focal Deficiency)

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Conditions, PFFD (Proximal Femoral Focal Deficiency)

Proximal Femoral Focal Deficiency (PFFD)

Conditions, PFFD (Proximal Femoral Focal Deficiency), Stories

Lucy’s Story

Fibular Hemimelia, Limb loss, PFFD (Proximal Femoral Focal Deficiency), Stories

Leo’s amputation and prosthetic cover story

News, Perthes, PFFD (Proximal Femoral Focal Deficiency)

Kelly’s 100km run for Rory

PFFD (Proximal Femoral Focal Deficiency), Stories

Jude’s story – PFFD and amputation

Conditions, PFFD (Proximal Femoral Focal Deficiency), Stories

Get in touch with steps to see how we can help

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What people have to say about Steps

Steps have been a Godsend to us, from not knowing anything about clubfoot when my son was born, we turned to groups and pages and then found Steps who have helped us massively. The information and help from other people who are going through the same, makes the whole process a little easier knowing we’re not alone and knowing I can turn to your page for any help or advice.

Danielle T

Thank to you Steps for organising events, raising awareness, and providing support and knowledge as always.

Rachel T

It’s great to see that Steps now also provide that support which is much needed for those diagnosed with Perthes as well as their families. I hope that my story can provide a bit of insight and a bit of comfort for anyone whose life is affected by Perthes disease.

Joshua

My parents used tips from the STEPS website they were made aware of. I have taken comfort reading other stories on the STEPS website of other children with mobility issues.

Ruby G

Steps Charity supports our work by producing excellent literature , chat rooms and helplines which are invaluable to our clubfoot families. They also promote awareness of clubfoot . We are very grateful for all that they do.

Denise W (Chelsea and Westminster Hospital)

I also joined the steps charity support page on Facebook which was incredible, I received so much support from other parents going through the same or similar situations as I was with their child/ children. I was given so much advice on how to prepare for the hospital stay and when we would get back home

Anon

We feel very honoured as a family that Leo is the first to receive a paediatric limb cover – Steps and Limb-Art have done an amazing job.

Claire W

Steps volunteer Natalie has been amazing and helped me to cope through everything.

Elise

Steps is the leading charity supporting everyone whose lives are affected by childhood lower limb conditions.

How We Help

Information and Guidance
Initial Contact Service
Family Events and Activities
Family Contact Service
Peer Connections – Digital Support Groups
Medical Negligence Complaints

Get In Touch

01925 750271

info@steps-charity.org.uk

The White House, Wilderspool Business Park, Greenalls Avenue, Warrington, WA4 6HL

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Registered charity in England and Wales (1094343), Scotland (SC049759) and also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 04379997. Registered office: The White House, Wilderspool Business Park, Greenalls Avenue, Warrington, WA4 6HL.
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